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HAVE YOU BEEN DIAGNOSED WITH HYPERMOBILITY SYNDROME?
If you have and would be willing to take part in this research, please click on the link below to complete a questionnaire about living with hypermobility.
Take the Online Survey
Take the Online Survey
What is Hypermobility Syndrome (HMS)
A variety of definitions for this disorder exist, below are some of the descriptions found on different websites.
HMS, originally described by Kirk Ansell & Bywaters (1967), now also referred to as Joint Hypermobility Syndrome (JHS) is a largely under-recognised and poorly understood chronic condition (Simmonds & Keer, 2008), known to produce a wide range of musculoskeletal, visceral, and psychological problems, which can seriously reduce quality of life (Grahame, 2000).
Hypermobility Syndrome is a poorly understood multi-systemic hereditary connective tissue disorder, which manifests in a variety of clinical presentations (Simmonds & Keer, 2007). HMS frequently presents with a complex array of symptoms, with pain being the predominant feature. Other reported symptoms include feelings of instability, subluxation, dislocation and stiffness as well as symptoms affecting other tissues such as paraesthesiae, tiredness, faintness and suffering flu-like symptoms (Keer, 2003).
The complex constellation of problems presents health providers with major challenges, and many rheumatologists remain largely unaware of the significance of Hypermobility and its impact (Grahame & Bird, 2001).
HMS can be a difficult condition to manage and has a wide range of effects as persons may struggle; financially, physically, emotionally, cognitively and also in intimate relationships. HMS is often misdiagnosed and symptoms can therefore be present for a long time before a correct diagnosis is made.
HMS, originally described by Kirk Ansell & Bywaters (1967), now also referred to as Joint Hypermobility Syndrome (JHS) is a largely under-recognised and poorly understood chronic condition (Simmonds & Keer, 2008), known to produce a wide range of musculoskeletal, visceral, and psychological problems, which can seriously reduce quality of life (Grahame, 2000).
Hypermobility Syndrome is a poorly understood multi-systemic hereditary connective tissue disorder, which manifests in a variety of clinical presentations (Simmonds & Keer, 2007). HMS frequently presents with a complex array of symptoms, with pain being the predominant feature. Other reported symptoms include feelings of instability, subluxation, dislocation and stiffness as well as symptoms affecting other tissues such as paraesthesiae, tiredness, faintness and suffering flu-like symptoms (Keer, 2003).
The complex constellation of problems presents health providers with major challenges, and many rheumatologists remain largely unaware of the significance of Hypermobility and its impact (Grahame & Bird, 2001).
HMS can be a difficult condition to manage and has a wide range of effects as persons may struggle; financially, physically, emotionally, cognitively and also in intimate relationships. HMS is often misdiagnosed and symptoms can therefore be present for a long time before a correct diagnosis is made.
This short video clip describes Hypermobility syndrome and what it is like to live with this disorder.
http://www.youtube.com/watch?v=PunQu-bId1M
http://www.youtube.com/watch?v=PunQu-bId1M
How long did it take you to get diagnosed with Hypermobility syndrome?
Support groups and UK Charities that support HMS
The Hypermobility Syndrome Association (HMSA)
The Ehlers Danlos Support Group
Arthritis Research Campaign (ARC)
The Hypermobility Syndrome Association (HMSA)
The Ehlers Danlos Support Group
Arthritis Research Campaign (ARC)
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