Hypermobility Syndrome

Hello and welcome to this site.

For the next few months this blog site will be used to gather information/opinions and experiences regarding Hypermobility syndrome for use as part of a research study being carried out at Thames Valley University, in order to develop and improve resources for Hypermobility sufferers! More information can be given on the study if required.

Please be aware that any information added to this site needs to remain anonymous and will be used as data for the research! Questionnaires for sufferers of Hypermobility syndrome will be added so please take part if you have been diagnosed with Hypermobility syndrome and also pass this link on to anyone else who may be able to help.

Many thanks

Nicole.

Any questions please e-mail me; nicole-marie25@hotmail.co.uk.




Do you have Hypermobility Syndrome?

Here is a 5-part questionnaire to identify hypermobility. If you answer yes to at least 2 of the 5 questions then there is an 80-90% chance you are hypermobile.

1. Can you now (or could you ever) place your hands flat on the floor without bending your knees?

2. Can you now (or could you ever) bend your thumb back to touch your forearm?

3. As a child did you amuse your friends by contorting your body into strange shapes or could you do the splits?

4. As a child or teenager did your shoulder or knee cap dislocate on more than one occassion?

5. Do you consider yourself to be double-jointed?

Source: Prof Rodney Grahame & Dr Alan Hakim Department of Rheumatology, University College Hospitals, London




HYPERMOBILITY AWARENESS QUESTIONNAIRE!

Have you ever heard of Hypermobility syndrome? How much do you know? To take part in a short questionnaire to explore the general publics knowledge of HMS please click the link below

Click here to take our Online Survey

Tuesday, 17 March 2009

Hypermobility treatments - what has worked (or not) for you?

One of the main areas of this research is to explore the wide variety of treatments recommended for HMS sufferers.

If you have any experience of using any particular treatments and wouldnt mind sharing your expereinces you can either post a reply below or email me if you prefer. It would also be usefull to know when you were diagnosed with HMS and if you are male/female. Any information would be appreciated!

Thank you